Tomorrow. Justin’s last spinal tap, also known as a lumbar puncture. He has had twenty-seven.
Tomorrow. For the last time, we will drug him with Ativan for his copious needle anxiety, refuse him food (because he has to fast), support him while they place an IV, then sit close to his face while they prep and sedate him. A large needle will then be injected into his spine, withdrawing fluid and inserting methotrexate (a highly toxic drug, but one which, thankfully, kills cancer cells) directly into his central nervous system. His little spine and developing brain. He will be conscious. He will feel the pain of the needle. But, too loopy to cry out, a single, large tear will run down his face. Then, mercifully, Justin will fall asleep for a bit, only to wake up to his favorite foods.
That last part isn’t so bad.
Tomorrow. For the last time, we will schedule another round of chemo. Tomorrow, we will have a date ready to announce for his last treatment!
If Justin does not relapse, that is. He will not be considered cured until March 2021. But we have to believe he will make it. We have to believe he will survive.
Tonight, Justin and I talked about what we think a “superhero” actually looks like. And we agree on this. A hero isn’t the strongest or the smartest or the fastest. A hero is one who gets knocked down and KEEPS GETTING UP.
We talked about how God has allowed and helped Justin to keep getting up.
We are endlessly grateful.
Thank you for continued prayer and support. Don’t miss the exciting series finale coming soon!
One thought on “Day 1027 – Last of the Dreaded Spinal!”
Oh Katie. Sometimes I get to the end of your post and realize that I am holding my breath. I have so much hope that Justin will be cured. Thank you for letting us come along with you. We want to be praying specifically and also your posts remind us to pray (we shouldn’t need a reminder but sometimes I do need, so I am grateful for your updates!) We will be praying tomorrow. I think you’re a super hero too.