To Live Through It

To live as a parent of a child, formally a blood cancer patient. What does it mean to live through it?
Long after the last drop of your child’s blood is medically deemed unpolluted with an alarming number of mutated leukocytes, fear still lives in you like a latent virus infecting your own cells. Dormant. Inactive at times. But, still, it is alive. You almost forget it is there, until, what otherwise might be a minor event or innocuous comment, somehow inflames panic.
The fear virus.

The fear virus flares up like a raging case of dermatitis. You feel the painful swelling and annoying itch, yet must carry on with your duties. But you know it’s not your best work. You attempt to cover the defenseless, raw blemishes. But you know others can still see them. You lament the discomfort; the whole sleepless, joyless, listless ordeal.

You apply ointments and balms, oils and antiseptics. But nothing works. You just have to let it run it’s course.

All you can really do is wait for it to pass.

Likewise, you wait for the fear virus to pass. You pray and you wait and you pray. You hold tightly to God and hope. It doesn’t leave your body, but it does leave your sight. It does pass. It will pass. You will live through it.

Grace be with you, parents and friends.



(Former) Cancer Mom Confession

Justin says he has a headache. Okay, no problem. I give him water. Maybe some ibuprofen.

It was always Tylenol before. Ibuprofen does something to your blood. Leukemia patients can’t have it. I can’t remember why, but I remember Tylenol never did much for the pain.

And just like that, I can hardly breathe. A random thought memory sends me reeling back into the rooms with awful lights. Awful smells. Pain. A bag of stranger’s blood and a bag of chemicals dripping down into my child’s veins.

I am there again. And I can’t get out. I can’t get out unless I anchor my mind to something. Something good. Sometimes a good memory. But, most of the time, it is words. Words on a page force my brain from the disarray of fight or flight to whatever part is more logical. To me, the amygdala is completely unreasonable, but can be commandeered with words and sentences.

So thank you for reading my words and sentences that, even after 7 years, are still needed to quell the panic attacks, bring me back to the present and make me breathe.

Justin is not sick anymore. He is here. His eyes are full of life and he is holding a baby chick. So carefully. So tenderly. God is faithful.

Two Years Post-Chemotherapy

Many times I am still asked how Justin is doing and many times I am reminded we did not walk alone.

Thank you for that.

Justin has now completed 6th grade with good grades and a leadership award of all things. This is the same kid who hid in our closet on many school mornings, hysterical with anxiety.

Justin played intramural basketball, bravely said his lines in school concerts, went camping for the first time and scored above average on a cognitive abilities test.

We signed a mountain of paperwork listing possible side effects of chemotherapy, including physical, mental, social and emotional.

Justin experienced some in each category. But with patience, prayer and an endurance that can only be explained by the grace of God, he has struggled and fallen, struggled and persevered, struggled and conquered.

I hope our story encourages you. Keep praying. Keep pushing forward. Just keep getting up. Stay down for a while to rest but don’t quit. If someone offers to help, take the help. And when it all feels too heavy and too dark and too impossibly difficult, hold onto hope.

See I am doing a new thing! Now it springs up; Do you not perceive it? I am making a way in the wilderness and streams in a wasteland.” Isaiah 43:19

If you are a parent of a childhood cancer patient in need of support, please feel free to reach out. I get it. Grace be with you.

Day 1641

Justin is holding steady in remission, with great blood counts and a good physical exam today. He has been visiting the oncology clinic every two months, but, going forward, he will now receive quarterly check-ups.

We are told Justin will begin the survivorship program in 2022!

This morning, he said, “Mom, when I grow up I want to be either a preacher or a mall cop or probably both actually.”

(Um okay?)

Me: “I think that would be perfect.”

Day 1,621

I actually forgot!

As we pass the FIVE YEAR mark since Justin’s diagnosis on January 16, 2016, I can report with gladness that the anniversary date of his diagnosis did not send me into a bout of struggling through post-traumatic flashbacks and unrelenting dark thoughts. In fact, to my absolute joy, I forgot the date until today. I actually forgot!

A Huge STEP…

This may seem like a gross omission, since we have looked toward this time with such faith, endurance and hope. But as one who has struggled and suffered and persevered with Jeff, Nicky and Michael, alongside Justin, all of these many days, I view it as a huge STEP. By His grace, I have been able to move forward. We have been able to move FORWARD.

There came a time when posting updates became too painful for me. I had to take time for self-care, rest and even moving into a new house. There are several reasons why we moved, but it is not lost on me that staying in the physical place where we experienced the longest of nights and greatest of pain was not healthy for the mind. We are so very grateful that God provided an alternative.

…only Jesus Christ can heal the heart and soul…

While it is true that I have walked through dark places with Justin, Jeff, Nicky and Michael and what often felt like being very, very alone, I also know what is not true. I was never alone. By His Spirit, Jesus was with me. I know this is true because we are HEALING and we are daily BEING HEALED. To me, forgetting the diagnosis date, even briefly, is evidence! Yes, chemotherapy, with its host of problems and side effects, CAN kill cancer. But only Jesus Christ can heal the heart and soul after being broken over and over again.

Justin will not officially finish treatment and move into the survivorship program until the end of March 2021.

If you are still receiving these updates, thank you for following and praying. Grace be with you.

“…And behold, I am with you always, to the end of the age.” Matthew 28:20b

Justin, age 10. Five year cancer survivor. It’s an honor and joy to be his mom!

Pictures of Pediatric Cancer

Swipe left to view our story in photos — almost 5 years of laughter and tears, joy and pain, triumph and loss, highs and lows, faith and fear, heartbreak and hope. And ultimately a new normal for a patient, a mom, a dad and two siblings — all survivors of pediatric cancer.

Be encouraged cancer parents, and hold onto hope!

And the Last Chemo Date is…

March 25, 2019.

Justin will receive his last infusion of chemotherapy on this day.

We are planning an open house-type celebration at a local park this Spring. More details on this to come…

We are coming up on a MAJOR hurdle but this is not, in fact, the finish line. As of the end of March, Justin will no longer receive treatment, but he will still be seen in clinic every month for a physical exam and CBC. The following year, fifth and final, we will make the trip to clinic once every other month. Medical exams, heart monitoring and needle sticks will still very much be a part of his life until Justin is declared completely cancer-free.

Justin must remain in remission for a total of five years to be considered cured.

We are staying ever-positive and hopeful, but, of course, without the regular infusions of cancer-suppressing drugs, concern over relapse becomes far greater.

I am elated and I am terrified. Our hope is in the Lord.