Day 6

Justin’s frustration and my exhaustion is really setting in. He had tantrums all through the night about taking oral medication and getting his blood pressure taken. He screamed at all of us. And we just let him because he needs to do that right now.

The upside is that his yelling is really revealing his fighting spirit. He has always been extremely willful which can be difficult to parent. But, in this case, I consider it a blessing as he fights for his life instead of just what he wants for breakfast.

We have an amazing nurse who is brainstorming ways to make the oral medication taste better so he doesn’t dread it so much. Currently she is fetching chocolate syrup from the cafeteria to mix in. A child life specialist is coming by to start teaching him how to swallow a pill. Hopefully that will catch on quick.

I am reminding Justin of a verse he learned recently at school. I don’t think it’s any accident that it is Joshua 1:9. “Be strong and of good courage; be not afraid for the Lord thy God is with thee whithersoever  thou goest.” (KJV)

I may try to take a quick walk outside today. I know it’s freezing cold, but I haven’t breathed fresh air in 6 days.

Please continue to pray for us. Grace be with you, my friends.


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