Thoughts From the Front Lines

IMG_6213I’ve become part of a team who advocates for better funding and research for childhood cancer patients. I celebrated along with them as the President just signed the Race for Children Act, a comprehensive new law mandating that new cancer drugs are also considered for children when appropriate. Currently, children receive chemotherapy drugs, which are often outdated while adult cancers benefit from newly developed drugs. This law will bring more equity in terms of cutting edge treatments as well as allocating more funds for pediatric cancer clinical research.

I’ve written multiple letters to senators and even the president himself. I’ve shared our story with them.

Next month, I will go to Washington to continue childhood cancer advocacy at the CureFest 2017. I will stand with many others at the White House, with a lit candle, for those whom have lost or are still in the struggle.

This is great and all.

But, tonight, my heart is weighed down with grief over the four children whose stories I followed. Whose little bodies I prayed for. Whose parents I tried to encourage. Yet, I watched them die along with the rest of those in our group who give a rip about people affected, no, torn apart by childhood cancer.

September is childhood cancer awareness month. What does that even mean? It means: be aware enough to do something. Can everyone make time to advocate or donate a million dollars?

No.

But anyone can take a moment to follow a child’s story on social media or in your own community, send a message of encouragement or take time to pray.

“It’s too depressing.” Well, yeah. Imagine how we feel. If we can push through this, you can too.

“I don’t know what is the right thing to say.” There is no right thing. Just say you care. Just say you will pray.

To my community of cancer moms, dads, friends and advocacy team from around the world, I am honored to bear with you and will continue to hold you in prayer.

And let us not grow weary of doing good, for in due season we will reap, if we do not give up. Galatians 6:9

For Ruben, Johnny, Bradley and Kai. I still see you.

 

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