Day 670


We are very, very grateful for your support.

Justin is tired. I am tired. But we are pressing on.

I originally said he would be checked again this Wednesday. But after a lengthy conversation with one of Justin’s doctors, the plan has changed.

His liver functions have improved! So his team wanted to check to see if his blood counts are stable enough to start him once again on chemotherapy this Wednesday.

But I said no. It can wait one more week. His body needs to rest.

He is already scheduled for a spinal and chemo infusion on the 29th. But the handfuls of chemo pills can wait until then.

His doctor, who is my favorite, agreed.

So rest he shall. I am keeping him home and away from germs because he has no immunity right now. He will rest. And I will try to disguise foods loaded with vitamins.

He has not gone out except to clinic in about two weeks. Today we visited a friend at his house, and enjoyed playing with his rather impressive Thomas the Train collection.

Justin will be able to go out for Thanksgiving, then back to his “bubble.” I  believe this is the best way to allow his body to recover without a communicable illness putting him into the hospital.

We set up Minecraft PC and he’s been playing online with friends while FaceTiming. It’s a pretty great temporary substitute for actually playing with other kids.

EC82151C-6109-4B3A-80B9-1367C7206687I write from a friend’s kitchen table with a hot cup of tea and sun streaming through a picture window. I am listening to Justin play a game with his friend.

Everything is going to be okay. I believe that. I will be fat and have gray hair, but my baby will be okay.

Lift up your eyes and look to the heavens:
Who created all these?
He who brings out the starry host one by one and calls forth each of them by name.
Because of his great power and mighty strength, not one of them is missing. Isaiah 40:26


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