Day 954

Today is a routine lumbar puncture to check for leukemia cells in the spinal fluid as well as to inject chemotherapy into Justin’s central nervous system.

It doesn’t seem like a big deal anymore because, sadly, we are used to it. But when I think about what is really happening, I pretty much hate it.

I choose to focus on the fact that this treatment is saving Justin’s life. Giving him a chance to LIVE. To stay with us.

Being pushed into adopting this outlook for my own survival has certainly changed my perspective. For the most part, I have moved past typical American attitudes.

I simply don’t worry about things that don’t be really matter. I don’t feel self-entitled. I don’t work overtime to try to make everything perfect for my kids, or even fair. I’ve learned that doing so, as a parent, isn’t really doing them any favors in the long run anyway.

I make tons of mistakes. I am flawed. I am human. But I am learning how to REALLY trust God.

Some people think it’s crazy to trust in Someone you can’t see. Something bigger than our own ego and capabilities. I say, what a relief. This is grace.

I have been playing music since the beginning, but recently discovered a little song which really helps him to relax. This is Justin’s song…

 

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2 thoughts on “Day 954

  1. A few minutes ago I attached a gold ribbon to Chloe’s book bag. This is a reminder to us that Justin is still fighting. We continue to pray!

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