Quarantined Family Photo Gallery

Making bone broth, sculpting clay to look like the surface of the moon, baking, board games, celebrating a birthday, connecting with friends online. Staying busy and grateful and remembering this week that He is Risen!

Real Mom Confession

What having a kid with cancer taught me is, well, a lot of things. But one currently useful thing is this: a crises will pass.

Now what things will look like on the other end of it is a different story.

But the crises itself WILL pass.

Day Two of Homeschool/Quarantine

Michael was done his assignments in 39 minutes. The other two, not so much.

From a mom who has taught in the classroom and homeschooled a cancer patient: parents, be gentle with yourselves.

Make a schedule. Realize you probably won’t stick to it perfectly. Take breaks. Compliment successes more than criticizing failures. Yours too. One thing at a time. Do something fun.

Day 1395 and a Survivorship Program

Justin remains cancer-free! We met with my favorite member of his oncology team yesterday. She explained his long-term trajectory now that he is one year off treatment!

Justin has one more year of monthly exams and blood draws before he will move into the survivorship program. This is like a dream come true. He will continue to be followed by doctors who understand late effects of chemotherapy and know how to treat them. Children’s Hospital of Philadelphia is the first hospital to pioneer a children’s survivorship program!

This is amazing, wonderful, super-duper news and a result of the research and work of many extremely dedicated, tireless, caring doctors and childhood cancer advocates.

This is the result of a faithful God who does not leave or fail us. He works through the hearts and minds of people to give us medicine, treatment, good hospitals, hope.

To all those out there in the struggle whether it be cancer, loss, pain or fear: hold onto God and hold onto hope.

Therefore, having been justified by faith, we have peace with God through our Lord Jesus Christ, through whom also we have access by faith into this grace in which we stand, and rejoice in hope of the glory of God. And not only that, but we also glory in tribulations, knowing that tribulation produces perseverance; and perseverance, character; and character, hope. Now hope does not disappoint, because the love of God has been poured out in our hearts by the Holy Spirit who was given to us. Romans 5:1-5

 

The Day My Heart Stops


I don’t mean the muscle heart. That keeps droning on, pumping blood and all. I mean my thought heart.

Because today they will check Justin’s blood. And, for a leukemia patient, that is like being scanned for the return of a tumor.

I will look relatively normal today. Brush my teeth, do the dishes, spend time with Justin. I will even drive him to the clinic.

But don’t ask me to make any big decisions or help Nicky with his Algebra homework (just kidding I can’t do that anyway).

My thoughts will be mostly focused on one thing. Healthy blood in our now nine-year-old son. Although I have been doing this dance for four years now, the struggle still gets real.

What can I say. God is in control and God is good. Thank you for continued support and prayer.